The FDA is meeting all day today to conduct hearings on ALS drug and research regulation. Pray NOW, for their eyes to be opened and for pathways made to get us medications so needed. Pray for “compassion clauses” to be made for ALS patients. Pray that the medications that show promise do not have to go through lengthy testing before we can get some life-giving measure!
Please submit an electronic comment , TODAY through March 25, on my behalf, on behalf of the 30,000 affected in the United States and 5,000 new cases each year ask for:
Safety trials that take into account the rapid progression of the ALS disease
Drug regulation that gets medications into the hands of the patients, sooner not LATER
Funding and Accelerated Resarch
“Compassion Clauses” for ALS patients that allow us to try new/experimental/promising drugs
The impact of the disease without medication treatment
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